Life With Adhesions

A little blog to help people understand what it is like to live with adhesions!

Sunny Days Are Here Again!

on September 23, 2012

Hi Everyone!  It’s been a while since I’ve done an update so I thought I would stop by and give you a quick update. I am happy to report that I am doing quite well in the adhesion pain department.  **Jumping for Joy** It has been 4 months since my surgery and I doing so much better!!

Unfortunately, I still have a lot to do in the healing department. The surgery and recovery from the adhesions was the “easy” part unfortunately.  I am now dealing with the “after-effects” of having my body and insides tugged and pulled in every direction for so long. I have been doing Physical Therapy to work on my psoas muscle which has decided to stay in a constant spasm since the adhesions.  It has been a lot of hard work, but I am happy to report that this pain is also getting a bit better.  I have started some water therapy (kinda like aquacize) to help build up the muscles and treat the pain.  I have good days and not so good days!  I have days (especially after a really tough PT session or water session) where I wonder if I’m doing better at all.  Then I start to heal and feel better and realize it is/will get better.  Slowly and surely, I will recover from these damn adhesions.

I also am dealing with the emotional/psychological side of healing.  I kept thinking, “If only someone could make all this pain go away, I would be so much better”.  Unfortunately, I never realized how much work it was going to be to try to heal emotionally.  This I struggle with every day and perhaps will tackle on another post one day.  I am taking a meditation class right now to help with this and, but realize it too is a slow process and one that I need to work at every day.

Finally, I am also still dealing with some pelvic pain issues.  At this point, it’s fair to say that it’s not adhesion pain, but I don’t yet have a diagnosis.  From the searching that I have been doing it could be related to Pudenal Nerve perhaps? I feel a little bit like I am back at the beginning of my journey again, trying to figure things out and look for answers.  Unfortunately, I am in need of a gyno again, but just like last time, the chances of getting in to see one in a timely manner is few and far between. I’ve been to see one Physical Therapist, but I don’t think she uncovered the true reason for my pain and am searching for another “better fit” to see if they can help me instead.  Again, when I know more, I will keep you guys updated!

That’s all for now, folks!  I am trying to happily adjust to my “new” life and my new struggles and trying to take one day at a time.  Let me know if you have any questions or comments that I can answer for you!!!

11 responses to “Sunny Days Are Here Again!

  1. Mary lyn says:

    nikki thanks for the update. glad to hear it. the pain will go away more and more. i have a damaged pudendal nerve from hysterectomy last year. i have a hard time bending and other functions if yu know what i mean but it happens to alot of women just beatring down over the years but specialist predicts since if started about month after hysto thats wh en it probably happened but adhesions came back too so mightr just be trapped but so glad to year your story. hang ikn there. i will be making my way to florida hopfully around beg of jan. im staying for a couple of months to do my care there but anyway.

  2. That’s amazing! Fingers crossed you stay this way. After being in pain for so long, you body might be healing itself – thanks to your surgeon – but you mind still treats you like you are still in pain I suppose. It will take time to retrain your mind to catch up with your body! Just give it time honey. Good luck and hopefully you and your husband can start to enjoy life the way it’s meant to be enjoyed.
    Luv Sandra. xxx

    • adhesions222 says:

      Thank you so much for your kind comments! You are right, I think it will take some time for my mind to catch up 🙂 Thanks for the support!!

      • Sandra Hampson says:

        I would be interested to find out how you feel, now its been about 5 months since your operation. I hope you are well hun. xxx

      • adhesions222 says:

        Hi Sandra! I am still feeling pretty good. Adhesion pain is about 95-100% gone. However, I am still dealing with the after effects of the adhesions pulling on my body for so long. Still getting some physio for my psoas muscle and just recently started some more physio for pelvic floor issues. So, it will still be a long road to recovery – but it’s amazing NOT to have the adhesion pulling, stretching, twisting pain to deal with. Still completely worth it!!!! 🙂

  3. mo says:

    Hi, I just spent a while and read your blog from beginning to end. I picked up your link from “SpicyT” blog, another Gal I talk with. Your story is heartbreaking, getting no attention from doctors and then having to travel to the States for surgeries. (Just wondering, if you have surgery outside of Canada, does your insurance help you pay the bills?) I had bad adhesions and endo that required surgeries to clean it all up. When you said your surgeon described adhesions as “spider-webby” I had to laugh. That’s what my surgeon told me too, and then he said mine were like cotton candy……gee thanks doc. My struggles with adhesions and endo is a subject I will write about soon on my own blog. Hope you continue to feel better and better!

    • adhesions222 says:

      Hi Mo! Thanks for your comment. I’m glad you enjoyed reading my blog. Us adhesion folks need to “stick together”! 🙂 My insurance has not helped with ANY of the costs – it has all come out of pocket unfortunately. However, I truly think it is a blessing in disguise b/c the doctors here don’t truly understand adhesions and I’m almost 100% sure that they would have come back if I had surgery here. I would spend the money again in a heartbeat and am very fortunate that we were able to do so in the first place. It will be 8 months in the middle of January since my surgery and I continue to feel better each day!

      Do you live in Canada? Have you had any relief/success from surgery?

      I can’t wait to read your blog – send me a link when it’s up and going!

    • adhesions222 says:

      I just found your blog! 🙂 Reading away. Take care!!

  4. tlohuis says:

    That’s the only way to do it. Live one day at a time, sometimes it’s one minute at a time. Another bit of information: You have to be your own advocate. Don’t just settle with whatever some doctor tells you. You know your body and if something is wrong. I had to go to several doctors, doctor after doctor until I found the doctors that were right for me. Don’t ever give up or let anyone ever make you feel like it’s all in your head. I wish you the best of luck on your journey.

  5. mysexyendo says:

    Im so glad you are feeling better and I love your sunny disposition! Thanks for visiting my blog, too. My last adhesion surgery was a nightmare about seven months ago. Many infections later, at least the wounds are closed. The pain is another story. I have no doubt another one has attached itself yet again and I have a seroma to deal with. I still look as if Im pregnant but as long as Im upright and walking it’s a good day!

Leave a Reply to adhesions222 Cancel reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: